Click Here to Read Brady's Story
Friday, June 30, 2006
Bradys Talking!
Well in the past couple of days Brady has learned that it can be fun learning to talk.Im not really sure what has changed things,but its like someone flipped on a light switch with his speech. He is vocalizing all the time.I walk into the room and he says,mama,mama. He says bu ba,which means Peyton most times. He says maw maw and even said ga ga for granny.He says boo boo,boo bah and many other sounds that we havent identified yet,I think he created those all on his own,lol.He has really come such a long way and we are just so proud of him.

Hes getting along well with his cast,still just as fast as ever,I didnt know he could move so fast with or without a cast on,shewww he tires me out!He is still climbing just as much as before the cast,its amazing really.
I am sad to say,we are loosing our PT that we have been working with on and off since Brady was 9mths old.We really,really hate to see her go,she will be moving out of town.But we are thankful that we have had the opportunity to have her in our lives up to this point,we will always love her and miss her very much.We love you Mrs.Susan!
Anyway thats about it for now.I will keep you updated on Bradys progress.

posted by angelwings @ 2:03 AM
   0 comments
Goal Helmet?
I might not play basket ball,but this goal sure does fit my head really good!

posted by angelwings @ 2:01 AM
   0 comments
Tuesday, June 27, 2006
Bradys Leg is Fractured
Just wanted to let everyone know that Bradys leg is fractured.We went and got his cast on today.He is doing really well considering,he has learned how to crawl with it on and even climb on everything.It doesnt seem to be slowing him down at all.Anyway just wanted to let you all know what was going on.

posted by angelwings @ 12:54 AM
   0 comments
Friday, June 23, 2006
Brady
Well its been a crazy month here!Me and Brady got a cold and lost our appetites.I got better and I got my appetite back,but he hasnt.He then got tonsillitis,and then hand foot and mouth disease!He is over all that now,but still hasn't gotten back to eating like normal.He is drinking ensure to hopefully keep his weight up,but we cant seem to find a reason for his lack of interest in food.He has had bloodwork done,but nothing showed up.

Well today he and big brother were playing,and big brother landed on Bradys leg.So off to the ER we went.They done lots of xrays but found nothing wrong.They think that maybe he just hyper extended his knee.If he isn't up crawling and pulling up in a couple days,they want to recheck him.Sometimes fractures wont show up til a couple days later.He is ok,but not able to move around much.He was sleeping but is now awake.He holds his leg and cries.When he is up,he just sits in one place and cries.Hes so active and cant stand not being able to move around.Hopefully he will be back to his active self in a couple days.To top it all off,Peyton has croup and ear infection and is on meds for that.Craig has been home all week with cellulitis in his leg!

I do hope that I can stay well to take care of everyone.I just know that next week is going to be a better week for our family.

Anyway we could sure use all the prayer we can get and it would be greatly appreciated. I will keep everyone posted.Bye for now.

posted by angelwings @ 12:03 AM
   0 comments
Monday, June 12, 2006
Update on Brady
Just wanted to let everyone that Brady is doing better.For those of you who dont know,Brady has been on a hunger strike.He went for a week straight without eating anything at all,thank goodness for ensure!Brady is a tough little cookie when it comes to him having to do something he doesnt want to.But with the help of the doctor and nurse,we held him down and managed to check the back of his throat,it seems that he has tonsilitis.So anyway he is on medicine for that,and eating a little better.He does still have days where he doesnt eat anything,but drinks ensure all day.But hey he is eating sometimes so thats better than going without for a week straight.

Also I took him to the doc because his legs are starting to look like they are growing inward at the knee.The doc and therapist agreed with me that something is going on.He also has what is called funnel chest,its and indention in the chest area.So we are trying to get him into shriners to be checked for these two things.I will keep everyone posted on what we find out.

Other than all that,Brady is doing really well.Hes still vocalizing,ga ga is his new sound for the week or month.We have also found a pair of shoes that he will actually keep on,so hes wearing shoes for the first time ever in his life.Hes climbing on everything,he even climbs up to the table and sits on the bench like a big boy.

Well I havent posted in a while so I wanted to update you all.

posted by angelwings @ 11:14 PM
   0 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Hello world!!!! It's been way too long since we p...
   Okay, so I often hear the phrase "I hate Angelman...
  To all the educators of siblings to special needs ...
 
  I CAN (Cure Angelman's Now)!
  Eegs before and after mino.
  Minocycline results are out!
  Brady riding the jetski
  Chatting in the car
  Brady chatting in bed
 
Archives
January 2005
  February 2005
  April 2005
  May 2005
  June 2005
  July 2005
  August 2005
  September 2005
  October 2005
  November 2005
  December 2005
  January 2006
  February 2006
  March 2006
  April 2006
  May 2006
  June 2006
  July 2006
  August 2006
  September 2006
  October 2006
  November 2006
  December 2006
  January 2007
  February 2007
  March 2007
  April 2007
  May 2007
  June 2007
  July 2007
  August 2007
  September 2007
  October 2007
  November 2007
  December 2007
  January 2008
  February 2008
  March 2008
  April 2008
  May 2008
  June 2008
  July 2008
  August 2008
  September 2008
  October 2008
  November 2008
  December 2008
  January 2009
  February 2009
  March 2009
  April 2009
  May 2009
  June 2009
  July 2009
  December 2009
  January 2010
  February 2010
  March 2010
  April 2010
  May 2010
  July 2010
  August 2010
  July 2011
  August 2011
  October 2011
  November 2011
  December 2011
  January 2012
  February 2012
  March 2012
  April 2012
  October 2012
  December 2012
  August 2013
  February 2014
  June 2014
  July 2014
  December 2014
  January 2015
  March 2015
  May 2016
 
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy