Click Here to Read Brady's Story
Monday, January 30, 2006
Fingers Crossed!
Just wanted to let everyone know that Brady hasn't been sleeping at all,he was staying up all night and not going to sleep until the next morning after everyone leaves for school and work, it has really taken its toll on me lately,and I just wasn't sure how much longer I could takeit. So we put him on melatonin which is over the counter and safe, thank goodness he is doing much better now, but still wakes in the night sometimes, but hey at least he is sleeping some. I also wanted to remind everyone that he will be seizure free for 5mths on the 7th of feb.YEY!!!So keep your fingers crossed for him will keep you posted. Oh I almost forgot, our new speech therapist came last week, I think were really going to like her. She was very open to ideas and suggestions,and Brady seemed to really like her. Just wait til she finds out just how hard headed and stubborn the little monkey is, oh boy!

posted by angelwings @ 2:00 AM   0 comments
Friday, January 20, 2006
Yo Mom!
Yo mom! Posted by Picasa

posted by angelwings @ 1:47 AM   0 comments
Now Listen You!
Now listen you! Posted by Picasa

posted by angelwings @ 1:46 AM   0 comments
Looking Cute at 2am
To bad mom cant look this cute at 2am.Posted by Picasa

posted by angelwings @ 1:45 AM   0 comments
Thursday, January 19, 2006
Sweet Poem
Just thought this poem was really nice and wanted to share.I couldnt copy it,but Im posting the link,enjoy. http://www.alighthouse.com/angel1.htm

posted by angelwings @ 3:08 AM   0 comments
JuicyFruiter
Just wanted to send out a little note to juicyfruiter for the kind comment posted on Bradys blog.I enjoyed reading your blog as well.Please feel free to come back anytime.Best of luck with your girlfriend.

posted by angelwings @ 2:42 AM   0 comments
Wednesday, January 18, 2006
Snoozing in Daddy's Chair
Just snoozing in daddys chair. Posted by Picasa

posted by angelwings @ 1:30 AM   0 comments
Daddy's not Gettin his Chair Back....
Oh daddy wont be gettin his chair back any time soon. Posted by Picasa

posted by angelwings @ 1:28 AM   0 comments
Mom, I'm so Sleepy
Mom Im so sleepy.... Posted by Picasa

posted by angelwings @ 1:28 AM   0 comments
Tuesday, January 10, 2006
Brady's New Doc
Just wanted to let everyone know that we found out about a new doc while we were at the neuro last week,his name is Dr.Percy. He is one of the top specialists in rare genetic disorders,in America. He is one of the worlds leading doctors in Rett Syndrome. We have an appt with him in April. He is opening a new study on Angelman Syndrome, Williams Syndrome,and Prater-Willi Syndrome. Brady will be able to participate in any possible treatments and in any further research that Dr.Percy's clinic is involved in. Not to mention,we will finally get to ask the questions and have them answered,rather than us having to inform the doctor about AS. We are really excited. I will keep you posted on how the appt goes.

posted by angelwings @ 12:32 AM   0 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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