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Tuesday, January 10, 2006
Brady's New Doc
Just wanted to let everyone know that we found out about a new doc while we were at the neuro last week,his name is Dr.Percy. He is one of the top specialists in rare genetic disorders,in America. He is one of the worlds leading doctors in Rett Syndrome. We have an appt with him in April. He is opening a new study on Angelman Syndrome, Williams Syndrome,and Prater-Willi Syndrome. Brady will be able to participate in any possible treatments and in any further research that Dr.Percy's clinic is involved in. Not to mention,we will finally get to ask the questions and have them answered,rather than us having to inform the doctor about AS. We are really excited. I will keep you posted on how the appt goes.

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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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