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Monday, December 19, 2005 |
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Important & Useful links for Angelman Parents
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I just wanted to post some addresses that have been very useful for me and family.Some are other Angel blogs full of useful tips and wonderful stories.Some sites range from sign language tapes to adaptive devices and communication devices.Some explain seizures,and others are support groups.There is even one address that shows you how to subscribe to the Angelman listserve. Anyway just thought this info would be useful for those just wanting to learn more about Angelman Syndrome,or those of you who have newly diagnosed children.When we first started our search for info on Angelman,I wish that I had a list of addresses to just click on and find info.It was a search and still is.I am always reading.But this will be a good start for those of you just beginning.
If there are any sites that I missed,I will be glad to add them to the list,please just email me.Thanks and I do hope this helps.
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posted by angelwings
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7:31 PM
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What is Angelman Syndrome?
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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