Click Here to Read Brady's Story
Tuesday, December 13, 2005
Calendar Project
I just wanted to let everyone know that Erin Sheldon and her family, from the Angelman listserve,are doing a fundraiser to benefit the Angelman Syndrome Foundation. A portion of the money will go to the foundation and will aid in research and many other things.This calendar has over 100 pictures of different Angels,it is wonderful,so hurry up and place your order. Erin said,"There's donors who will match any gift to the ASF between now and Christmas so we want to send in our check now and get it matched! " So I ask that you please contribute to this wonderful cause. And you can check Erins daughter,little Maggie,at on her blog. To order your calendar go to http://www.sheldonhickey.com/Calendar/index.htm
Thanks so much for your help.

posted by angelwings @ 5:10 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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  Aint she a Cutie!
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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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