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Monday, January 30, 2006
Fingers Crossed!
Just wanted to let everyone know that Brady hasn't been sleeping at all,he was staying up all night and not going to sleep until the next morning after everyone leaves for school and work, it has really taken its toll on me lately,and I just wasn't sure how much longer I could takeit. So we put him on melatonin which is over the counter and safe, thank goodness he is doing much better now, but still wakes in the night sometimes, but hey at least he is sleeping some. I also wanted to remind everyone that he will be seizure free for 5mths on the 7th of feb.YEY!!!So keep your fingers crossed for him will keep you posted. Oh I almost forgot, our new speech therapist came last week, I think were really going to like her. She was very open to ideas and suggestions,and Brady seemed to really like her. Just wait til she finds out just how hard headed and stubborn the little monkey is, oh boy!

posted by angelwings @ 2:00 AM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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