Click Here to Read Brady's Story
Monday, February 20, 2012
Clinical Trials Update
So at 11am this morning, we will be signing Brady up for clinical trials!!!!! These trials have shown promise at reversing cognitive and motor defects of Angelman Syndrome in a mouse model. There will be 24 participants chosen for this trial in Florida. Praying that our Brady is chosen to participate and that the trials are successful in humans as they have been in the mouse model! Please keep our family as well as, the other families and doctors/researchers in your thoughts and prayers over the next few months as this could quite possibly be the first ever Angelman Syndrome treatment :) Regardless of whether our little guy is chosen for this trial, we are super excited for everyone involved and cant wait to see what the future holds!!!!! Will keep you all posted :)

posted by angelwings @ 3:15 AM   5 comments


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About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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