|
 |
|
Monday, February 20, 2012 |
|
Clinical Trials Update
|
| So at 11am this morning, we will be signing Brady up for clinical trials!!!!! These trials have shown promise at reversing cognitive and motor defects of Angelman Syndrome in a mouse model. There will be 24 participants chosen for this trial in Florida. Praying that our Brady is chosen to participate and that the trials are successful in humans as they have been in the mouse model! Please keep our family as well as, the other families and doctors/researchers in your thoughts and prayers over the next few months as this could quite possibly be the first ever Angelman Syndrome treatment :) Regardless of whether our little guy is chosen for this trial, we are super excited for everyone involved and cant wait to see what the future holds!!!!! Will keep you all posted :) |
posted by angelwings
@
3:15 AM
  |
|
| 5 Comments: |
-
Hi all, we all hope that your angel will be selected for the trial. Could you update us with the latest news?
Big smiles from Holland.
-
Hi Huub! We got into the trials!! Will keep you all posted :)
-
Hi there im realy happy for your little man, my little girl is 9 and has angleman im realy hoping these trials can do for humans what it did for animals.
keep us posted
God Bless
-
yes keep me posted please im realy interested to hear how you get on
-
Hi, can you update on the trial. I know you probably must not tell anything just give us a hint of hope that you see improvement or any sign of change.
love from us
|
|
|
Home
Post
Edit |
|
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
Okay, just time for one more post! I was sifting t...
Well just had a moment and thought I would update....
Well we are back!! Lots of exciting things happeni...
Hello everyone!!!! First let me just apologize for...
Hello All!!!!Now that life has slowed down a bit, ...
Well its been a little while since we updated, so ...
Well things are going great here!! brady is back t...
Hey guys! Im proud to report that things have been...
Quick Update
I know that some people will not understand why I ...
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
Hi all, we all hope that your angel will be selected for the trial. Could you update us with the latest news?
Big smiles from Holland.