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Wednesday, January 18, 2012
Okay, just time for one more post! I was sifting through old comments and just wanted to tell you all that I am so humbled by each comment! I am reminded now, why I started this blog in the first place. I apologize for not updating as I should these days; life just gets so busy. Please know that I am never to busy to be there for any of you who need me. Please feel free to look us up on FB, its under Life As An Angel. Also you can email me at sfore@centurytel.net I pray that all of you find peace and support. Enjoy your precious babies; God has given you an amazing gift! Good night!

posted by angelwings @ 1:04 AM
   2 comments
2 Comments:
  • At 12:51 PM, Blogger Huub Klein said…

    Hi, do you have an update to the clinical trial?

     
  • At 3:18 AM, Blogger angelwings said…

    Hi Huub! Sign up for the trials will begin at 11am this morning. They will be held in Tampa Florida. My understanding is that if all goes well, the treatment will be available for everyone by Nov. In the first phase of the trial, 24 participants will be chosen, ages range from 4-12yrs of age. In the second stage of the trial, a wider range of particpants will be chosen, approx 100 I believe. I will continue posting on our blog with update as they become available. Thanks for following :)

     
 
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here

I am a happy, healthy 9yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say; I make that very clear to mommy and daddy everyday!

See my complete profile

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The Angelman Syndrome Foundation is a national organization of families, caregivers and professionals who care about those with Angelman Syndrome. It is also a member organization of the International Angelman Syndrome Organization (IASO).

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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