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Wednesday, January 18, 2012 |
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| Okay, just time for one more post! I was sifting through old comments and just wanted to tell you all that I am so humbled by each comment! I am reminded now, why I started this blog in the first place. I apologize for not updating as I should these days; life just gets so busy. Please know that I am never to busy to be there for any of you who need me. Please feel free to look us up on FB, its under Life As An Angel. Also you can email me at sfore@centurytel.net I pray that all of you find peace and support. Enjoy your precious babies; God has given you an amazing gift! Good night! |
posted by angelwings
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1:04 AM
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Hi, do you have an update to the clinical trial?
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Hi Huub! Sign up for the trials will begin at 11am this morning. They will be held in Tampa Florida. My understanding is that if all goes well, the treatment will be available for everyone by Nov. In the first phase of the trial, 24 participants will be chosen, ages range from 4-12yrs of age. In the second stage of the trial, a wider range of particpants will be chosen, approx 100 I believe. I will continue posting on our blog with update as they become available. Thanks for following :)
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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Hi, do you have an update to the clinical trial?