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Wednesday, January 18, 2012 |
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Well just had a moment and thought I would update. Brady is doing great! Knock on wood, he remains seizure free for now. He is back in school and got new braces for his legs recently. He is doing great with the braces but they will have to be adjusted. His gait is more steady and he seems more confident with his braces. We went back for an EEG in Dec and everything looked really good. Hopefully we can stay on this track and keep him healthy and seizure free for a very long time. He continues to make progress in many areas. We are still working on potty training and self feeding, but it will come in time.
Clinical trials will hopefully begin by the end of the month, but we wont know right away if Brady is going to get in, so please keep him in your prayers. We did learn that trials will start in Tampa Fl, which is great for us, as its within driving distance. For more info about trials visit www.cureangelman.org
We have many Angels who are having seizure difficulties at the moment, so please remember them in your prayers. While I love Brady just as he is, I pray that one day Angelman Syndrome will be a thing of the past and that our children will no longer have to suffer the difficulties that come along with this syndrome.
Anyway, its nearly 1am so I better hit the hay. Hope you all have a blessed day! |
posted by angelwings
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12:44 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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