angelwings,

You seem eternally optimistic and positive! Are you part of any support groups, and if so, which ones? What helps you over come the challenges that ocurr as a result of Brady's diagnosis, and maintain such a positive outlook?

Taryn08

 

Hi Taryn,
Thank you for taking time to check out our blog and thank you for your kind comments. I do try to be positive most of the time, but of course I have my moments, just as everyone else, where I would rather hide out on the couch and eat junk food,lol. I do belong to a few support groups called the Angelman listserve, which you can find online, I belong to several facebook groups as well. The most support that I have found is from Angelman parents, Angelman loved ones, as well as teachers and therapists. We have an amazing community that always manages to lift my spirits when Im down, support me in the trials that we face, and point me in the right direction for finding necessary resources for my son. As for the challenges that we have faced since diagnosis, there have been many, but the hardest has been seizures. It hurts my heart to see my little guy and all the others who have to suffer from seizures on almost a daily basis. The battle never stops. The thing that keeps me going is the giggles, hugs, and smiles. I know that Brady was placed in my family for a reason. He has purpose in this life and I think that purpose is to open peoples eyes. He teaches people compassion, pure love, and that even in the most challenging situations, we have to remember to smile. This past time when he came out of the coma and off of the vent, he came out with the biggest smile ever. He reminds me that life is too short to dwell on the negative things. We have to look forward, never take a day for granted, and always find the joy in even the smallest things. Our family and our outlook on life, has truly grown because of him and others like him.