|
 |
|
Wednesday, August 03, 2011 |
|
Quick Update
|
Brady is doing so great today! We went to his Ped this morning and had a great visit. Brady got lots of hugs, popcicles, and stickers while he was there,lol. He has been full of smiles and flirts today...its so great to have him almost back to his old monkey self :) The appointment went well. The doc says that Brady looks great, especially for what he has been through lately. He said that the little cough is just from the tube and could last for up to three weeks. We got some cream for the rash on his face (from the tube), and with the help from our awesome Ped and his staff, we even managed to get our insurance to pay for namebrand Zonegran. Note to all parents: be careful switching to generic seizure meds. We dont know that the switch caused this, but it is ironic that he began to have problems shortly after we allowed the pharmacy to switch him from namebrand zonegran to generic. Insuurance told us that they would not pay for namebrand unless we tried generic and had a problem....I would consider a drug induced coma a problem!
Anyway, the day was great.We are super excited to be flying to Boston to meet with a specialist. Dr. Thibert is an epilepsy specialist, but has tons of experience with "Angelman Epilepsy". We will also be seeing a new epilepsy specialist in Birmingham. We are nervous about the new changes, but know that it is necessary to be sure that Brady is taken care of.
Well thats about it for me, I am beat. Remember to pray for all those in need tonight...there are so many. Thank you all for the continued support and dont forget to VOTE :) |
posted by angelwings
@
11:27 PM
  |
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
I know that some people will not understand why I ...
Brady continues to progress. He made his first tri...
Well, now that I have some downtime, thought I wou...
Vote for FAST!
Were back!
Warning: The stories that I am about to present ar...
Well Brady its been a busy week in the Fore house ...
Well its been a while folks! Sorry for all the del...
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
