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Hello! Its been a little while since I posted, so hear goes. . .
Brady is doing well, finally. He has spent the last, nearly two weeks, sick with some kind of infection. He was having major spells of coughing and just a low grade fever on and off. After a week on omnicef, with no improvement, we started a new antibiotic. He is nearly finished with that one and doing lots better. We have been seeing a lot of staring spells/absent seizures, but are hoping that these will get better as he gets over his sickness. He had his first day back at school today and done really well.
As many of you know, we attended the Angelman Syndrome Walk-A-Thon in Nashville this past weekend; it was amazing! I dont think that I have ever seen so many Angels in one place. Words cannot begin to describe the joy that all of these individuals and their families bring to my life. We met so many phenomenal families while we were at the walk. The thing that struck me most was how so many people, from all walks of life, were brought together for the same purpose. When we do these walks, we are not students, homemakers, lawyers, doctors, or singers; we are just people who love our families. We all share many of the same challenges and recognize the same simple joys in life. Anyway, as I said, Nashville was great!! The people in that city are all so warm and friendly, despite everything that they have been through with the floods lately. We are looking forward to next years walk and especially to meeting up with our extended Angelman Family again.
Now for the most important part of my post! ITS BRADY'S BIRTHDAY TODAY!!!!!!!!! Whooo hoooo, my little man is 8yrs old today! I know that some people may not fully understand just what this day means to us, or just how special it really is. At 1am this morning as I worked on my BIO final, I realized that my Brady had been 8yrs old for nearly an hour. I could not help but to reminisce over the last 8yrs of our lives, and think how blessed we are to still have Brady in our lives. So many times,Brady has been in the hospital or in seizure status, and we had to wonder if he would make it through. Last December when he was in the hospital, there was a point when I truly wondered if I would be leaving the hospital without my precious boy. Thanks to God's amazing love and grace, we did bring our sweet boy home. Thanks to God, Brady made it through each and every struggle and is still with us today. I can truly say that Brady's 8th birthday really is a miracle!I pray that we have many more birthdays together and that God continues to lay his hands on our little Angel. Brady Boy, we love you more than words could ever say (sniff, sniff). . .
Anyways, moving past the mushy stuff. I'm off to post pics from the walk, and some videos of Brady birthday shopping. Enjoy :) :) |
posted by angelwings
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3:41 PM
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Sunday, May 09, 2010 |
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Hey guys!!! Just wanted to post a quick update! I'm feeling so very blessed tonight! I have two of the best boys in the whole world. Peyton has been in our lives for nearly 12 years now and Brady has been in our lives for almost 8 years; time sure does fly!!!
Life has been a journey, to say the least! However, I cannot even describe how blessed I feel to still have both of my sweet Angels in my life. As many of you know, Brady has faced so many medical challenges over the past 8yrs. There have been many times that we honestly did not know if he would survive. By the grace of God, Brady did survive and has gone on to bless our lives for the past 8yrs. I am so thankful for every second that my sweet boys are with us, as there are so many parents that no longer have their children in their lives. I just could not imagine my world without either of my precious boys. So hold your precious children close and enjoy every minute with them, some people do not have that privilege.
Now that Ive got all the mushy stuff out, I will move on to more interesting updates,lol. Brady is doing great! So far, his seizures seem to be under control (knock on wood). He continues to attend school and is doing very well. I kept my baby nieces last week and Brady really behaved very well around them. He even tried to hold the babys bottle in her mouth one time. I had to tak Brady to school around 10am, so loaded him and the girls up in the car and headed that way. I got the girls out, then got Brady out. Since had a carrier in each hand, Brady was unable to hold my hand walking into school; he done so good!! He walked behind me the entire time, just like a big boy. One thing that Brady did do before I took him to school, was to sniff my lips after I had kissed the babies feet,lol lol. Brady associates feet with stink, because of his brothers foot funk,lol. He now is in the habit of touching our feet then smelling his hands, it totally cracks me up,lol.
Anyway moving on. . . were getting ready for our big Angelman Walk-A-Thon next week. Since Alabama no longer has a walk, we will be traveling to Nashville for this one. And yes, we are a bit nervous, as much of Nashville is currently flooded. We did call our hotel and the walk coordinator and it seems that everything is safe for the walk to proceed. Our good friends from Pensacola will be traveling with us, so we are super excited. Cant wait to meet all of the new families this year!!!! Dont worry, you will be sick of looking at pictures when I get back,lol.
Well, gotta go do some more laundry, lots to do before next week. Will post more later.
Happy Mother's Day to all of your super special mommys out there!!!!!!!!!! |
posted by angelwings
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12:44 AM
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