Click Here to Read Brady's Story
Monday, December 17, 2012
Well its been a while but I wanted to let everyone know how things are going here. Brady is doing amazing. He remains seizure free since last July (knock on wood); he is thriving. I traveled to Chicago recently and had an opportunity to hear Dr. Weeber speak about the trials. He of course could not share details but did say that so far results have been positive. Keeping my fingers crossed that all continues to go well for every participant. Not much going on here aside from the busy life of Brady. Anyway just wanted to let everyone know that we are doing well. Will post more later.Hope You all have a Merry Christmas!


posted by angelwings @ 12:04 AM   2 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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