Click Here to Read Brady's Story
Friday, October 20, 2006
Vacation photos.











posted by angelwings @ 3:12 PM   0 comments
Thursday, October 19, 2006
Trip to Shriner's.
Just wanted to let everyone know that we got back from our trip to Shriner's Hospital,this week. Everything went well. They say that Brady's legs,feet,and hips are perfect. The docs seen no deformaties and said that they believe Brady is on the verge of walking. They did say that they would follow him until he is 18yrs old and help with anything he might need,ortho wise. They were super nice and so helpful. I just cant say enough good things about Shriner's and its staff.

posted by angelwings @ 1:01 AM   1 comments


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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