Well Brady's therapy room is pretty much complete,except for a few final touches that is.He is now doing therapy in his new room and loving it.We come in,put him down and he goes straight to his new room.It is great!And not to mention,big brother Peyton,loves it just as much as Brady!Brady is doing therapy in his hot tub in his new room.I never dreamed that he would have anything like this,but with help from friends and family,determination,and hard work he has something it,thanks Rod!Anyway Im going to post some pictures of him in his room and hot tub,enjoy!
Okay I have been holding off on this post,not wanting to jinx anything.But I have to post its just to exciting.Brady has been about 2 mths with no seizures at all.He is doing wonderful.Hes doing things things that I have never seen him do before.Hopefully we are going to be able to move foward now and not backwards due to seizures.Keep him in your thoughts and prayers please!
I am a happy healthy 5yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say. I make that very clear to mommy and daddy everyday!
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
The
Angelman Syndrome Foundation is a national organization of families,
caregivers and professionals who care about those with Angelman
Syndrome. It is also a member organization of the International
Angelman Syndrome Organization (IASO).
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.