Angelman Syndrome, Life as an Angel

Tuesday, April 22, 2008

Why do I always have to be the one that starts to do laundry and there's
> no
> detergent? I guess it was time for me to do my "Dollar Store" run, which
> included
> light bulbs, paper towels, trash bags and Clorox. So off I go.
>
> I scurried around the store, gathered up my goodies, and headed for the
> checkout counter only to be blocked in the narrow aisle by a young man
> that
> appeared to be about sixteen-years- old.
>
> I wasn't in a hurry, so I patiently waited for the boy to realize that I
> was there.
>
> This was when he waved his hands excitedly in the air and declared in a
> loud voice, "Mommy, I'm over here."
>
> It was obvious now, he was mentally challenged, and also startled as
> he turned and saw me standing so close to him, waiting to squeeze by.
> His eyes widened and surprise exploded on his face as I said, "Hey Buddy,
> what's your name?"
>
> "My name is Eddie and I'm shopping with my mother," he responded proudly.
>
> "Wow," I said, "that's a cool name; I wish my name was Eddie, but my name
> is Hal."
>
> "Hal like Halloween?" he asked.
>
> "Yes," I answered. "How old are you Eddie?
>
> "How old am I now Mommy?" he asked his mother as she slowly came over from
> the next aisle.
>
> "You're fifteen-years- old Eddie. Now be a good boy and let the man pass
> by."
>
> I acknowledged her and continued to talk to Eddie for several more minutes
> about summer, bicycles and school. I watched his brown eyes dance with
> excitement because he was the center of someone's attention. He then
> abruptly turned and headed toward the toy section.
>
> Eddie's mom had a puzzled look on her face and thanked me for taking the
> time to talk with her son.
>
> She told me that most people wouldn't even look at him, much less talk to
> him.
>
> I told her that it was my pleasure and then I said something. I have no
> idea where it came from, other than by the prompting of the Holy Spirit.
>
> I told her that.... "There are plenty of red, yellow and pink roses in
> God's garden. However, "Blue Roses" are very rare and should be
> appreciated
> for their beauty and distinctiveness. You see, Eddie is a "Blue Rose" and
> if someone doesn't stop and smell that rose with their heart and touch
> that
> rose with their kindness, then they've missed a blessing from God.
>
> She was silent for a second, then with a tear in her eye she asked, "Who
> are you?"
>
> Without thinking I said, "Oh, I'm probably just a "daffodil or maybe even
> a
> dandelion," but I sure love living in God's garden.
>
> Pastor Hal Steenson
> This real life story took place July 12, 2006.
The Keeper of The Blue Rose

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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