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Wednesday, April 09, 2008 |
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| Today is a sad day for the Angelman community,as we have lost one of own,a leading Angelman Specialists, Dr Wagstaff . He was one of the most caring,compassionate doctors that we ever had the pleasure of meeting. He truly has impacted so many lives in the short time that he was with us. He will be greatly missed by his friends,family and the Angelman Commnunity. This is such a tragic loss to everyone that he was involved with. Please keep Dr.Wagstaff's immediate family and his Angelman family,in your thoughts and prayers. We will be walking in May for the Angelman Organization,but also in memory of Dr.Wagstaff as well. |
posted by angelwings
@
10:50 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Brady playing.
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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