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Thursday, April 03, 2008
As many of you know,Brady still has stitches from his surgery. He has stitches in his neck and in his chest. They don't usually put stitches on the outside with VNS surgery,but in his case,they chose to do so. We were all concerned that he might tear open his incisions if he didn't have some extra stitches. So anyway we assumed that stitches would dissolve,as we got no instructions on them when we were released from the hospital. Well,the stitches are still there,show no signs of dissolving. So I spoke with the surgery dpt at the first of the week,she was a bit surprised to learn that he had stitches on the outside. We already had an appt scheduled for tomorrow,so we are going to see about them then. They seem to be growing into his incisions. So if they have to take them out tomorrow,Im afraid its going to be an ordeal. I know that when Brady had staples in his head,it was a nightmare to get them out,we couldn't hold him down. He ended up bleeding all over the place. Some of the staples were broken,which made them more difficult to get out. So hopefully the stitches will be easier to remove. Say a prayer for our little man.
Everything else is great here. Brady has been such a sweetheart today. We found a kids tune station on the tv,he was mesmerised,lol. He would sway side to side at the slow songs,and shake his butt when the fast songs came on,lol. He has been so happy. We played outside this afternoon,he loves his new sand.
Anyways he seems to be having some trouble falling asleep tonight,so Im gonna go rock him for a while.
I will update tomorrow night,on how the docs visit goes. Nite yall.

posted by angelwings @ 12:40 AM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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