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Wednesday, April 16, 2008 |
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Just wanted to post a quick update. Brady is doing great!! He is still a busy boy,but seems to be really calming down a bit lately. So far,we still haven't seen any seizures and he is doing really well from his surgery.He has been so sweet today,giving out love every time I turned around. I cant even begin to describe how lucky I feel to have him in our lives,and for him to be happy and healthy. I am so thankful for my sweet little man. My heart is heavy with grief for Ashley's family and Dr. Wagstaff's family. I cannot begin to imagine how they are dealing with their tragic situations. I look at my sweet little guy and realise that what happened to Ashley,could have so easily happen to him. So guys please hold your loved ones close,and treasure every moment with them. None of us know what is going to happen,tomorrow is no guarantee. Put that house work off,put the yard work off,and all those other things that you think just have to be done. Take that time and spend it with those closest to you,the rest can wait.
I'm not sure if I updated everyone on Ashley or not,but we have learned that she didn't have an allergic reaction to peanut butter,but actually got choked on a peanut butter sandwich. Please continue to keep this family and Dr. Wagstaff's family in your thoughts and prayers. I will post more updates as they come. God bless each and every one of you tonight. |
posted by angelwings
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11:53 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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