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Sunday, April 13, 2008 |
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Not much happening here,but I wanted to post a quick update. Brady continues to do well,no seizures. He slept all night last night,even went to sleep pretty early. He got up early yesterday,so by night,he was totally manic. He was in a good mood,but determined to tear everything apart. He is doing great this morning,just being a busy little boy. He has been using his little go talks,all I hear is,"I want my cup","I'm hungry,feed me", and "I want my maw maw",yeah his brother programmed them,lol. We have got to get him something better for him to use to communicate. Were throwing around the idea of a touch screen device,so that he wont be able to take off the overlays and destroy the pictures. Hopefully we will hear back from his ST with the Augmentative Team,this week. I'm looking forward to Brady finding his own voice and way to communicate,he is showing such a desire to tell us what he wants,its very exciting. He has come so far,from that little boy that could hardly push the buttons on the talkers. We had to make sure they weren't indented to far,weren't to small,etc. But now this kid can push any kind of buttons,even those he isn't supposed to,lol. He loves pushing buttons on the elevators at the doc. He pushes the Up button,then we show him which floor and pushes that one,hes such a big boy. Anyway he has truly come so far,and is learning so much,so quickly. My baby boy is growing up. He will be turning 6yrs old,May 21. It just doesn't seen like its been 6yrs already. His brother is going into double digits this year,he will be turning 10yrs old,uhhhhhh.
I have to give a shout out to big bubba as well. He made top 100 readers in his school,so hes gets to go on a field trip,were soooooo proud of him! I thank God everyday for both my beautiful boys,I wouldn't trade them for the world.
Anyways that's about it for me. I will post more later. |
posted by angelwings
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1:31 PM
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Push! Push a button!? Have you sold out and given up on your southern roots of "mashin'" buttons!
Stephanie, I'm slow but I get there. The blog is fantastic and I am so excited to hear Brady is doing so well post surgery!
I've got laryngitis so I'm not going to call for a few days but wanted to send you my love and let you know I'm thinking about you all!
It is still snowing here but warming up into the upper 30's, which really does feel good. We had a nice blizzard last week and so more snow on the ground just as it was finally melting.
Please give Brady a big hug. I am so excited that he is finally going to get a chance at a communication device! Good luck.
Tell Peyton I'm very, very proud of him. Top 100 Reader is amazing!
and last but not least big hugs to you and Craig. I do miss you bunches!
Love,
Ms. Lisa
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Push! Push a button!? Have you sold out and given up on your southern roots of "mashin'" buttons!
Stephanie, I'm slow but I get there. The blog is fantastic and I am so excited to hear Brady is doing so well post surgery!
I've got laryngitis so I'm not going to call for a few days but wanted to send you my love and let you know I'm thinking about you all!
It is still snowing here but warming up into the upper 30's, which really does feel good. We had a nice blizzard last week and so more snow on the ground just as it was finally melting.
Please give Brady a big hug. I am so excited that he is finally going to get a chance at a communication device! Good luck.
Tell Peyton I'm very, very proud of him. Top 100 Reader is amazing!
and last but not least big hugs to you and Craig. I do miss you bunches!
Love,
Ms. Lisa