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Tuesday, April 15, 2008 |
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I got up this morning to read a heartwrenching email about one of our sweet little Angels in Alabama. The email reads as follows:
"Angelman Families,
Ashley Williams, daughter of Alicia Black-Williams (Birmingham site coordinator), is in intensive care at UAB on life-support. On Sunday Ashley had a severe allergic reaction to peanut butter. She both respiratory and cardiac arrested. Since that time Ashley has been on life-support. We have been in contact with Alicia and it was just confirmed that Ashley’s tests results showed no brain activity. They will be repeating these tests again this afternoon. Please keep Ashley and the family in your prayers at this very difficult time. I will post again to update everyone, but please do not try to contact the Williams family at this time. Thank you."
Please be praying for sweet Ashley and her family. I cannot even begin to imagine what they are all going through at the moment. I will keep you guys posted. |
posted by angelwings
@
12:20 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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