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Tuesday, April 22, 2008 |
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Hey guys!!! Were getting excited as the Angelman Walk a Thon draws near!!! I want to invite everyone to come and walk with us in Mobile Al, May 17th. As Brenda said,the more the merrier!! We are hoping for an amazing turnout this year,as this will be the first walk ever held in Mobile. I really wish that all of you would come and join in on the fun,its going to be a hoot,and the best part is that we will be surrounded by Angels!!!! Anyone and everyone is invited,even if you don't have a connection to Angelman Syndrome. We appreciate all the support that we can get,and we need your help to promote awareness about this syndrome,as well as help fund research in finding a cure.
We went out taking up donations here in town today,everyone was so very nice and we appreciate everyone taking the time out to help us reach our goal. And hey,we made it all the way,without Brady breaking one single item,whooo hooo!!
We have a low goal set on Brady's fundraising page this year,as we understand that times are tough. But were really hoping to surpass that and have to raise our goal up even higher. As you can see,we have now reached 85% of our goal,and we are excited!! We even have some business' here that are donating door prizes for our walk,how cool is that!!!
Anyway just wanted to invite everyone to come and walk with us,I promise it will be loads of fun. And we wanted to thank everyone that has helped make this event possible. If you cant make it to the Mobile Walk,then maybe you could make it to the Birmingham Walk. If you cant make it to either of these,go to www.angelma.org and check out all the other walk sites all over the US, the options are endless!! It is through your support,that we are able to do this every year,and that we are one step closer to finding a cure for this syndrome,so THANK YOU,and Brady sends lots of sloppy kisses your way. God bless each and every one of you!!!!!! |
posted by angelwings
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3:07 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
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The AS Forum was created in April
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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