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Saturday, April 19, 2008 |
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I first, want to say thank you all so very much for your prayers, for little Ashely and her family,I know that they appreciate all the prayer they can get. But it saddens me to say,that sweet little Ashely passed away. Her family removed her from life support Thursday. I just cannot even begin to imagine what this family his going through,so please continue to pray for them. My understanding is that her dad and little brother are taking it very hard. Her mom is so very strong,but still needs your prayers as well.
You can visit Ashley's Memoral Page to post a note to her family. You can also vist her Firstgiving Page to donate to the Angelman Syndrome Foundation in honor of her memory.
I will post more later. |
posted by angelwings
@
10:21 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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