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Friday, October 19, 2007 |
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| Brady is doing well today,but still running temp. He and his brother both decided to get sick at the same time. So their doing double shots of motrin,lol. Brady has been super sweet today though,we have had a good day,considering. He is really mastering climbing up and down the steps in the camper now,so check out the video of him climbing Still no news on the surgery yet. Oh and we got Bradys medical bracelet in today,it looks really cool. Of course he had that sucker off within a few seconds after I put it on him,lol. I had to take a sewing needle and add a couple of stitches into the velcro,to keep him from being able to take it off,so far so good. Hey at least my Home Ec skills are paying off,lol.Anyway,will post more later. |
posted by angelwings
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1:38 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
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Hey guys. We took Brady to the ER yesterday aftern...
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Bradys drop seizure.
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| Archives |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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| Angelman Links |
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More cheers for Brady!!!