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Saturday, September 29, 2007 |
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Hey guys. We took Brady to the ER yesterday afternoon,because of the multiple seizures. For some reason the seizures seem to start every night,usually after 7pm. So anyway we told them it wouldnt be long before he started and we were right. In the hour that we timed them,he had 8 seizures. So they hooked him up to depcon,which is the same as the depakote that hes already on,but its IV. So it took about 10 minutes to get in his system. If that didnt work,they were going to admit him,and Im not sure they knew what to do next if that didnt work. Thank goodness the depokene seemed to work. He didnt have any other seizures after that,until we were nearly home that night. So far we have seen only one seizure,so were keeping our fingers crossed. By giving the depokene through IV,it has taken him up to a full dose of depakote now. See we had increased his depakote a couple days before,but it hadnt had time to get in his system fully as of yet. But we were afraid that he was going to really injure himself,falling from the seizures,before we could the meds in him all the way. So anyway by giving through the IV he is up to a full dose now,so when we gave his depakote last night,it was at max strength. So hopefully it will keep working for him. We like the depakote so far,we havent seen any side effects. And since Brady has come off the lamictal he is walking,making new sounds,eating and sleeping better.
Anyway Im rambling now. Brady is home and doing well. I will post more after tonight and let everyone know if the dreaded seizures start back tonight. Thanks for all your prayers,please continue them as we go into the nighttime hours again. |
posted by angelwings
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9:58 AM
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Brady is in our prayers Steph!!! I am glad he is home.
Deb
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Brady is in my prayers too! I pray that he won't have anymore trips to the er.
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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Brady is in our prayers Steph!!! I am glad he is home.
Deb