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Monday, September 17, 2007 |
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Great news!! Maggie is off the ventilator!!!!She is breathing on her own,with very little assistance. Medically shes doing really well for what she has been going through.But her mom said Maggie has been a little sad,she really doesnt understand whats going on and shes pretty uncomfortable at times.She still has a long road to recovery,so please keep the prayers coming,they are working!
Now for Kassy,shes doing good too.I talked to her mom last week on the phone,and she was so tired. Kassy is responding well to treatments,but still has secondary infections from all the tubes and meds,so we have to continue to pray for her guys.Also please pray for her mom,and the rest of her family. Her mom said she hasnt been home but once since June I think. So I can only imagine how tired and stressed she must be by now. We have to pray for God to give her strength.
Now,Brady is doing well,he played in the water all day today,had a blast. His eating has improved so much,but he still has a ways to go. We had a big poop party this weekend,it was sooooo bad! The poor recliner had to be hosed down and so did Brady,lol. Of course he loved it and thought it was just to funny.Anyway not much else happening here. I will update later. |
posted by angelwings
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12:51 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Just wanted to let everyone know that Maggie has t...
Brady had a good day today. He slept in this morni...
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Interactive Seizure Diary |
This
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Angelman
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The AS Forum was created in April
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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