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Sunday, September 09, 2007 |
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Just wanted to let everyone know that Maggie seems to be getting better a little all along. She is still on the ventilator,but is stable.She still needs our prayers as she has a long road to recovery ahead of her. So please continue to pray for her and her family.
Brady had an ok day today,but has been a bit cranky. He took a long nap today,so now sure if he will sleep tonight. He is still running a low grade temp at times,so hopefully will feeling better soon.
He of course is still into everything. He managed to sneak into the bathroom today and turn the hot water on while he was in the tub. I found him crying and sitting in the back of the tub with his legs hanging over the side. Thank goodness it didnt hurt him as he was only there for a short time. I ordered a cover for the spout to keep the water from being to hot while coming out,so hopefully that will prevent any future accidents.If anyone needs info on the spout,just let me know.
So far so good on the new meds,no major seizures as of yet. We continue to pray that these meds will help him regain control over the seizures. Will keep ya posted all along. |
posted by angelwings
@
10:38 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Brady is doing ok today,but has had a bit of a fev...
We have two more Angels to add to our prayer list....
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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