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Friday, September 07, 2007 |
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We have two more Angels to add to our prayer list. First is Alec,he is 5yrs old. He just had surgery and had a g tube place,to aid in his non eating habits. He done well with surgery and is back home,but since has been having seizures on a daily basis. He is going on another med to hopefully help stop the seizures.
The second Angel that we have is Kassy. She is in the hospital,has been for several months. Kassy has a tumor,in her abdomen,I believe.Anyway shes getting treatments along with many other things at the moment. Her mom just wrote in and said that she has some infection,in which they are treating,but that Kassy is being a real trooper. So please say a very special prayer for all of our Angels,including little Maggie that is still in the hospital as well. As far as I know Maggies condition hasnt changed much,which her mom says is always a good thing in the ICU. All of our Angels and their families need our prayers,so please take a moment and pray. Thanks |
posted by angelwings
@
5:45 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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