Click Here to Read Brady's Story
Friday, August 17, 2007
Well we started the clonidine for sleep last night,and Brady did wake a couple of times,but never got up. He seemed so rested today,and had a great day. He played outside this afternoon,in his water table,literally in it,lol. He doesn't like to just stand beside it,he has to climb right up in the middle. He has been in a good mood all day. Hes such a joy to be around,we have the best time together. He loves to sit in my lap and play,hes such a mamas boy. Brady has really been on top of things today though. He drank all of his cup,then took the lid off and took the nipple out. Later on he brought me the cup and the lid,but he couldn't find the nipple. He wanted something to drink,so we had to get another cup. I know this might seem so small and unimportant to some people,but were really proud of him. He knew that he had to have both the cup and lid and he brought it to us. Well later on he brought me a diaper and was fussing at me,he wanted to be changed. I just laughed and told him to take it to daddy,and he did. Then he started telling his daddy off,he wanted to be changed right then,lol. Hes been playing with his new pup,Bailey,tonight. They are going to be lifelong friends I think. Brady butt scoots in circles and she chases him barking. Brady thinks its the funniest thing ever. They also like to play hiding seek from one another,its so cute. I think Bailey is going to be so good for Brady and our family. Oh yea,Brady and Bailey love to share each others toys. Bailey had Brady's toy chewing on it tonight and Brady got Baileys toy and started chewing on it,gross, I know,but what do ya do,lol.
Things are looking up for neuros as well,we have an appt with a new one that is supposed to very approachable and personable,so please say a prayer. We have an appt on Oct 5th. Well thats about it for now. Share more later.

posted by angelwings @ 12:40 AM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Ok as many of you know,Brady had a bad seizure Fri...
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