Click Here to Read Brady's Story
Sunday, August 12, 2007
Well Brady is doing well. Still sleeping a lot,and very droopy,but better. Were going to the doc tomorrow to find out what the next treatment plan is,hopefully. I'm just so very thankful to have my sweet little boy home,and on the road to recovery. I feel extremely blessed,but at the same time feel so very sad for little Elijah,his family,and others that are going through such tough times right now.
Elijah is our Angel friend from NZ,that is in the hospital due to a long,traumatic seizure. His dad took some time this morning to let us know that things aren't looking good for their precious little Angel. It seems that the seizure has really taken its toll on his little body. He isn't expected to be with us much longer. So please pray for this family,they need all the prayers and support that we can give them.
My heart is just breaking for them,I cannot begin to imagine what they are going through. All that we can do is just pray. So please take a moment to say a very special prayer for them.

posted by angelwings @ 11:14 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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