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Saturday, August 11, 2007 |
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Brady he is home and doing well. He acts kind of like a drunk person. He will lean forward and just tip on over,or the same with leaning backward. He acts really doped up,but hasn't had anything since the diastat at 3am. He usually has a long recovery time when he has a bad seizure,so its to be expected really.
Anyway it all started at 3am this morning. I was sitting in the chair watching a movie,and Brady climbed up in the recliner beside me and went to sleep. He had been sleeping,or so I thought,for about 10 or 15 minutes,when I got up and walked over to check on him,like I always do. I have a habit of checking on him every so many minutes. Anyway When I got around to the front of him could see that he was jerking. I tried talking to him for just sec,but of course he didn't respond. So I yelled for my husband to get up and get the diastat while I took Brady back to the living room and lay him on the couch. I tried to take his pjs off to give the diastat,but they wouldn't come off,because his legs were straight as a board and super stiff. So finally I ended up just ripping the pjs off so that I could get the diastat in him. Well,a few minutes after the diastat was given,he was still seizing,which hes never done after diastat. So we got the other tube and gave it,knowing that he was going to the hospital one way or the other. We ran out,in our pjs,no shoes,door unlocked and jumped in the car to go the hospital. About 30 to 45 minutes,,maybe even a little more,had passed,when finally he stopped seizing on the way to the ER. But he became completely limp,had no control over his limbs or head,and was totally unresponsive. I really had prepared myself that I was going to have to do CPR. I just really felt that he was going to stop breathing,either from the seizure or the extra diasat. Btw,the docs did tell us to give the diastat back to back in an emergency situation,if needed. So anyway,we got to the ER,I told the lady at the front desk,we didn't have time for paperwork,open the door and let us back. They didn't do anything for Brady. They did start a needle,just in case he had to have ativan,which I suggested he might. They never started a drip,or anything. They had no clue as to what to do for Brady and openly admitted that.
We still dont know what were going to do about Brady's meds,there will be a med change of some kind. Our ped couldn't get up with our neuro,no surprise. So were meeting with our ped on Monday to discuss what were going to do. We will most likely go back to the neuro next week,and the endoscopy with the GI doc,will be canceled until we get the seizures under control.
I told Craig,this morning was the first time that I have ever really felt that I might loose Brady. I actually felt sick on my stomach,and had so many,what if,thoughts running through my mind. He has had so many seizures before,but I never really had that feeling that it was life threatening,until this morning. I know that if I would not have been awake,and caught the seizure in time,there is a strong chance that we would have lost him,I just don't know how I could survive that. I told my mom,now everyone can understand why I don't sleep,even when he does. He depends on me to look out for him.
Oh btw,we did have blood work done to check for sickness,but everything was normal,or so they said. We cant figure out what has changed to make him start having seizures again,we thought maybe he was becoming somewhat immune to his meds,he has been on them for a long time now. Or we thought that it just might be the heat,it has been up around 103,with a heat index of 110 to 116,so its been smoldering.
I will keep you posted on what we find out and how things are going. I also wanted to mention,please keep our sweet little Angel friend Elijah in your prayers as well. Elijah is in the hospital from bad seizures. Here is his blog, http://elijah-angelstory.blogspot.com/ Elijah lives in NZ. Big hugs to them. |
posted by angelwings
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10:20 PM
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Oh Steph
I am so sorry things are hard right now. I will keep Brady in my prayers. I miss you
Deb
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Oh Steph
I am so sorry things are hard right now. I will keep Brady in my prayers. I miss you
Deb