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Monday, August 20, 2007 |
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Brady is doing well. He started his new sleeping med this past week and has been sleeping much better. He is actually sleeping at the moment. I feel likes its going to wear off soon and hes going to wake up. So Im just hanging out,waiting and watching. Hes been in such a sweet mood today,but is turning into a bit of a mamas boy I think.
Anyway we are really excited,we finally found a new neuro,which actually called us at home today!!! That is definitely a first for us. Looks like Brady is going to be changing his meds from topamax,lamictal and keppra,to keppra and depakote. I really hope that the change is going to be good for him,I think that without all the side effects from the other meds,his progress is going to be amazing. So keep your fingers crossed,that it all works out. The neuro really sounds great,were going to meet with his on Wed of this week. Anyway,thats it for now. |
posted by angelwings
@
12:30 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Well we started the clonidine for sleep last night...
Ok as many of you know,Brady had a bad seizure Fri...
Just wanted to let everyone know,that our little A...
Well Brady is doing well. Still sleeping a lot,and...
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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