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Thursday, September 06, 2007 |
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Just wanted to ask everyone to continue to pray for our little Maggie. She is still in the hospital on the ventilator,but she is holding her own. She has ups and downs,but nothing has changed for the worse. She does still have severe pneumonia at this time. The doctors are reassuring that she will be able to make a full recovery. For those of you who dont know Maggie,or want to get to know her a little better,you can visit, http://sheldonhickey.com/
So again,please pray for Maggie and her family during this very stressful time.
Now,we had a big night last night. Craig had to work late,so it was just me and the boys here by ourselves. Anyway sometime after dark,my oldest son came running in screaming at me,just panicing. He had been watching cartoons on the couch in the living room,while Brady and I hung out back here in the therapy room. Apparently someone started wiggling the doorknob and pushing on the door trying to get in. So I called my hubby at work,he was on the road,so not where he could get home. So my brother n law and step dad came over to check things out for us. They didnt find anyone,they were already gone by then. So it wasnt a very restful night for us,plus Bradys magic pill didnt kick in til about 5am this morning ):
Anyway were all fine now,hopefully nothing else will happen. Brady has started eating again,I dont want to jinx it by saying anything,but I have to brag. He started out eating baby food this weekend and has moved up to baby food,pediasure,and real food. He had two big helpings of mashed potatos and peas last night. He ate several peices of divinity candy,and has been eating all day today. I dont know what has gotten into him,but whatever it is,Im thankful. He is coming off one med and going onto another,so not sure if one of those is having an effect or what,but hes one hungry little boy these days,lol. So far his seizure meds seem to be working,he has only had one small seizure in his sleep a couple nights ago. It only lasted for a few seconds and he only had one. I am expecting to see some small ones since we are in the middle a med change.
Well thats about it for now,will post more later. |
posted by angelwings
@
10:33 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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