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Sunday, August 26, 2007



























































































Well,were finally back!! We headed out Thursday,to Shriners in Tampa Fl. We made the trip well,and the visit went well. Brady got a little cranky on the way down,but nothing major. But for some reason he thinks its just to funny to poop in his pants when we get in a car!! So he spend the entire weekend purposely pooping every time we got in the car,lol. Anyway the docs at Shriners say that Brady is very flat footed,but not to worry yet. They say that since Brady has sensory issues already,the braces might just make things worse. All of his xrays looked good and they said his chest isn't anything to worry about. Of course Brady had them laughing the entire time,he was completely being a monkey,it was so cute. Brady was even able to get a smile out of one of the most bitter,sour looking men there,so hopefully it made the guys day. Brady meant he wasn't passing by without at least getting a smile,lol.
So anyway we headed out to Daytona right after the appt. We stayed at our Aunts place on the beach,it was really nice. But the trip to get there took 4hrs because of an overturned diesel,yikes!! I was so disappointed that we had to drive right past Disney World and not stop :(
But like I said,we did have a good time. The boys had a blast! I think they started growing fish scales before we left,lol. I have lots of pictures,150 or so,lol. I'm gonna post the best ones here. Anyway we drove home today,it would have been about a 6hr drive,until the tire blew out for no reason!! So we put on the little spare and limped to the nearest walmart,which was 50 miles away. We waited then for over an hour and a half to get the tire replaced,then headed home again. So it took us about 8hrs or so to get home. We are completely wore out and heading to bed very soon. But I wanted to get this post and pictures on here,before bedtime. It really was a great weekend,the boys were both so wonderful and well behaved most of the time.
Oh and Brady loved the goofy golf at our condo,we would hit the ball down to the hole and he would dunk it in,what a big helper he was,lol. Oh and he loved to drink the water that was spraying out in the kiddy pool,at least he wasnt going to get dehydrated,but I think his eye balls were floating before he got out,lol. Anyway talk to ya later!!














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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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