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Wednesday, September 19, 2007
Just wanted to let everyone know that Maggie and Kassy both are doing really well,aside from some complications with Kassy. They both seem to be headed for recovery,so thank you all for your many prayers.
Alec is still having some seizures,but seems to be getting better,so please continue to pray for them all.
Brady is doing really well,he has been walking up a storm today. He walked up to maw maws house,so we are very proud of him. His skills really seem to be taking off lately,hes jabbering up a storm,nodding his head for yes and no questions and just doing wonderfuly. He definately has a mind of his own since hes been walking. He doesnt always want to go in the direction that were going,so the chase is on,lol. We just pray that he doesnt have any major setbacks,like seizures or irregular bloodwork! We go for bloodwork on Monday,will let ya know what we find out. Will post more later. Oh and Im going to get a video of his walking tomorrow,to post here,so stay tuned,lol.

posted by angelwings @ 11:43 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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