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Tuesday, September 25, 2007
Maggie is home!!! She is doing well,but exhausted from her ordeal,and so is her family,but shes home!! We are very happy for her and her family,but will continue to pray for her,as she has a lot of rehab to regain lost skills. Her mom said she isnt able to sit or stand just yet,most likely because shes just to tired and weak. Im sure she will be up and running again in no time.Way to go Mag!
As for Brady Boy,hes still having drop seizures. He seems to be mostly having them during night hours. He has had a couple tonight and even busted his nose one time,his eyes are already turning black. Luckily it isnt affecting his walking skills,but we have to get these drops under control very soon. Were still waiting to hear back from the lab work before we start making any decisions. All in all,Brady is doing well,still walking all over the place,and loving every minute of it. Will post more later.

posted by angelwings @ 11:07 PM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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