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Tuesday, October 02, 2007
Brady is doing well,he is only having about 4 drops,that we see,a day. He is pretty cranky from the med increase,and isnt walking as much as before.Hopefully he will purk up soon. He did something so cute tonight,I have to brag!! I was taking video of him walking and he thought it was so cool,he was showing out. So after he walked to the tv and back like I told him to,he grabbed the camera and turned it around,so that he could watch the video that I had just taken of him walking. He did this twice,he would walk,so that I could get footage then come back to watch it,it was so cute!

posted by angelwings @ 12:28 AM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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