Angelman Syndrome, Life as an Angel

Thursday, July 17, 2008

YEY!!!!!!! We have our papi's and Brady couldn't be happier!! He is so,so much calmer now that he has them. God really had a hand it us getting these papis. The lady that we bought them from,went above and beyond to get them to us for the best price she could and to get them here as quickly as possible. She shipped them out Monday and we had them by Tuesday afternoon. I know most people wouldn't understand how much of an impact that something as small as a pacifier would have one someones life,but trust me, it will make our lives so much easier. Brady has major oral sensory issues,he has to have something in his mouth to calm him and a pacifier is the cleanest,safest way to do that. Our speech therapist told me one time that when we are concentrating while writing, most of us tend to chew on the end of the pen or pencil were using,or we have at some point or the other. For some reason it helps us concentrate and focus. The papis have the same effect on Brady,they just help him focus and stay calm. Anyways were just glad to have them here and be getting some rest.
As for everything else, things are good. Brady has been being a little monkey today. HE came over and stole my bag of chips tonight, I told him to take them to dad and let him help,so he did it. He proudly walked right over to his dad and handed him the chips :) Another thing he done was while we had him sitting in the high chair in the bathroom,while we got our baths. He inched his chair over to the counter and grabbed a screw driver. His dad says "hey Brady, I bet you cant throw that thing down",well of course reverse psychology worked,lol. He threw that screw driver down just as quick as his dad said that. Just like any other kid,if they think you don't want them to do something, they will,lol.
We had the boys in a kiddy pool under the carport tonight,so we decided to let the puppies out of the pin for a bit. Well Binki got to close to the pool,so Brady decided to give the poor little thing a bath,lol. They had a good time though, but Brady didn't think it was time to get out of course.
Not much else going on here. We have an appt with the Augmentative clinic in August,hopefully we can come up with a good device for Brady to use to communicate,he is so ready! I just pray that he does well and shows everyone there what he can do and doesn't just show out,we just never know how hes going to do.
Well that's about it for now. I'm going to try and get the monkey to sleep. Will post more later.

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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