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Saturday, July 12, 2008 |
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| Well I can safely say,that all he double L has broke loose since my last post here. Shortly after I posted, that Brady wasn't sleeping at 3am,but was happy,he became very irritable and still refused to go to sleep. He stayed awake all night Thursday night,until 2pm Friday. He was screaming,kicking,hitting,pinching,biting and anything you could think of. He went into some kind manic episode,but would not go to sleep,even after having a sleeping pill that night. I ended up calling the ped about lunch time Friday,begging for ideas or a solution as to how to calm him down and possibly get him to sleep. We decided to go ahead and give him half a seroquil,even though he had already had a clonidine,which had no effect. Hours after the seroquil,he did finally calm down and go to sleep for about 3 hrs,thank God!!!!!! Friday night he again,refused to go to sleep and was manic again. My husband stayed up with us last night,to give me a break. We fought with Brady until after 6am this morning, when he finally closed his eyes for a while. He was back up by lunch and ready to go again. We are all totally exhausted here and in total shock. He has been doing so good since his surgery in March,we just cant figure out whats going on with him. I know that something is happening,but just cant put my finger on what it is. My mother n law came down today and could see that Craig and I were wiped out,so she insisted that both our boys spend the night with her tonight so that we could get some much needed rest. So we are childless tonight and looking forward to a good nights sleep. The only thing we can figure is that Brady is going through withdrawls from one of his meds,that we are in the process of weaning him off of. I hope and pray that things get better once he is totally off,not sure I can go another 2 yrs with absolutely no sleep. Anyways thats about all thats happening here, I will post more as it happens. Wish us luck!!!!!! |
posted by angelwings
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11:12 PM
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Hi.
I can totally identify with what you are going through. My own son, who suffered with CP / autism, didn't sleep for the 6 years of his life and I know the absolute frustration,exhaustion and fear which accompanies looking after a child with some of the problems you describe.
It probably is withdrawal from meds, which are exacerbating the situation, but it makes me wonder, are the docs going too fast with this? I remember my own son being taken off benzodiazepines over the period of a month and he went crazy. Many years later, when we withdrew him ourselves over a year, we were much more successful.
For the sleep, there is some recent research on 'cherry concentrate' which has been shown to help with sleep. Might be worth a try. Or he could be developing some sensory processing difficulties which need addressing.
Peace to you.
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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
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Hi.
I can totally identify with what you are going through. My own son, who suffered with CP / autism, didn't sleep for the 6 years of his life and I know the absolute frustration,exhaustion and fear which accompanies looking after a child with some of the problems you describe.
It probably is withdrawal from meds, which are exacerbating the situation, but it makes me wonder, are the docs going too fast with this? I remember my own son being taken off benzodiazepines over the period of a month and he went crazy. Many years later, when we withdrew him ourselves over a year, we were much more successful.
For the sleep, there is some recent research on 'cherry concentrate' which has been shown to help with sleep. Might be worth a try. Or he could be developing some sensory processing difficulties which need addressing.
Peace to you.