Click Here to Read Brady's Story
Tuesday, July 29, 2008
We have had such a good day here,other than having a naked little Angel most of the day,lol. For some reason Brady hasn't wanted to wear clothes today, oh well, we all wish we could have naked days,whether or not most of you admit it or not,lol.
Anyways we went up to Maw Maws this afternoon and the boys decided to play in the rain. Brady was soaking wet and covered in mud,but he had a blast.
OMG!! Brady just put his toy back on the shelf where it came from and got a new toy, there is hope for him cleaning up after himself,even my typical 9yr old has problems with that,lol.
As I was saying its been a good day. He is really enjoying his brother being home, but he loves to be a pest to him :) Peyton does really well including Brady. He loves to take him into the other room to "watch tv",which Brady really doesn't do. He just walks around looking for things to get into of course. He did watch part of the Wizard of Oz last night,which was a real shocker,as he doesn't sit still for anything usually.
OH! Did I tell you guys that some of our Angel friends and family sent Brady a "Papi Package"? As most of you know,his papi's were discontinued,so a family up North found the papi's in some stores there,and picked up a bunch for Brady,we never even asked them to. It was the sweetest thing ever, the package said "From one Angel to another", how precious is that!!!!!! I am so totally floored that they would do this for someone that they have never even met, they truly are amazing people. Its so wonderful to know that there are people like this in the world. I cannot not wait to meet them at the conference next year,were going to have so much fun! I keep thinking of something special to do for them,but of course they say that we better not do anything. I just want them to know how special we really think they are and how much they have touched our lives. Anyways we will figure out something :)
Well guess I better get going here, Brady is demanding a cup, hes not very patient. I will post more later.

posted by angelwings @ 12:28 AM
   0 comments
0 Comments:
 
Home        Post        Edit        Post a Comment
 


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Well were doing good here. Brady has had a busy we...
  Well its been a busy week! We had to go to the hea...
  Just wanted to let everyone know that Brady is doi...
  Well its been a busy weekend here. Brady spent mos...
  Well we made it back from the doc today and they s...
  Were heading out to the ENT to have Brady's nose a...
  YEY!!!!!!! We have our papi's and Brady couldn't b...
  Well,things are finally settling down here,thank g...
  Well I can safely say,that all he double L has bro...
  Well its official, I'm a bad mommy!!! As I was say...
 
Archives
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy