|
|
Sunday, June 15, 2008 |
|
Well its been another busy week. We had three little girls staying with us last week. Brady had a blast chasing them around, they are all so good with him. He woke me up one morning yelling at the top of his lungs,so I ran out to get him before he woke all 4 kids up,but it was to late. He was on his knees in the middle of their bed,jumping up and down,yelling "girl,girl,girl",lol. He pulled his first all niter,this past week, since his surgery. Luckily he and I were already up,when two of the girls decided at midnight they wanted to go home,uhhhhhhh. I took them home and then when I got back the third girl decided that she was ready to go home as well. So me and Brady loaded her up and took her home. But Brady didn't end up going to bed til 9am the following morning. Thank goodness he has been sleeping well since then,so hopefully it was just a bad night and not the start of a bad habit. Anyway the girls decided that day about lunch that they were ready to come back,so they spent another night with us. Big bubba started running a fever that day,and ended up in the middle of the night not being able to breath,he has croup again. He has run a fever all weekend,I'm praying that Brady doesn't decide to join him. Not much else going on here. Were going to start potty training as soon as Brady's potty chair comes in, I do hope it goes well,it would be such a relief to have him trained. Well that's about it here,I will post more as it comes. Night guys. |
posted by angelwings
@
10:44 PM
|
|
|
|
About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?  
Ok, this is the 4th time I have tried to update to...
Just wanted to let you guys know that we didn't go...
Things are good here. I took Brady to the Ped toda...
Well,Brady continues to have trouble with his foot...
Well,its been another busy night here at our house...
Brady is still doing well. His incision is looking...
Turned out to be a busy day here today. We had 3 g...
Not much to post here tonight. Brady is doing good...
Sorry for the late post guys,Im a little on the pu... |
Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
Angelman
Forum & Chat |
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
Cure Angelman Syndrome |
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
Angelman Links |
|
| |