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Wednesday, June 04, 2008 |
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Turned out to be a busy day here today. We had 3 girls spending the night last night. I noticed after Brady went to sleep and got still,that his VNS incision had what looked like a pimple/blister on the end of the incision. Infection in these incisions are a huge deal. If the infection gets into the leads on the device,it will have to be removed,it could be life threatening. The wires are wrapped around the vagus nerve,which controls many functions within the body. If the wires have to be removed, there is a chance that it can cause severe nerve damage. So anyway we ended up driving an hour and a half to see the surgeon today. She said that it appears to be an internal stitch getting infected. She tried to see it,but it was to deep to do anything with today. We just have to wait it out and see if it dissolves or works its way out. She said it would flare up on and off for several more months,we just have to keep it washed in iodine and keep a band aid over it. We have to avoid lakes,public pools,or anywhere else that he might pick up bacteria. If it gets worse,then we will have to take him back and let them cut open the incision and see if they can get the stitch out. Hopefully it wont come to that and that things will heal up on their own. I don't even want to think about having to have this device removed,or what life would be like afterward. It is controlling Brady's seizures and is making life so much better for him and our entire family. We are finally feeling some kind of normalcy,the first in a very long time.
Anyways I will keep you guys posted. Please keep him in your thoughts and prayers. |
posted by angelwings
@
12:08 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Brady dancing at Angelman Walk
Angelman Walk 2008
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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