Click Here to Read Brady's Story
Monday, June 02, 2008
Not much to post here tonight. Brady is doing good,but not wanting to go to sleep. He has had a small temp tonight,so I'm sure hes getting sick. Hes had a good weekend though. He has been walking all over the pool with no floats on,he thought he was big stuff,lol.
We had something funny happen in the grocery store Friday. We were in the checkout line when one of the cashiers just happens to pull out a shoe and said to the other lady that someone had lost this shoe in there last week,but never came back to claim it. I spoke up and said oh,that's our shoe,lol. The woman was shocked,she asked if we still had the other one at home,I told her yeah we did,we were hoping the mate would turn up,but weren't really expecting it to. Brady had managed to loose 2 pair of shoes in two weeks,at least we got one pair back. He is so bad about kicking off a shoe in the store,or even throwing it out the car door in the parking lot. I cant even begin to count the pairs of shoes this kid has been through in the last year,lol. Last Sunday we ended up going to church with no shoes,because he had lost them all! I know the people at church thought, oh those poor people cant even afford to buy shoes for their child,lol lol. I just didn't realise til Sunday morning that he had lost them all,lol. We had one pair left and they were locked up at Maw Maw's house. Oh well,Brady was more than happy to go to church with no shoes,lol. I went shoe shopping,so with those and the pair that we managed to retrieve from the grocery store,were back up to 4 pair,that should last us about 4 weeks,lol.
Anyways I think hes winding down,I hope,so I'm gonna get ready for bed. Hope to have more to post tomorrow.

posted by angelwings @ 2:27 AM
   0 comments
0 Comments:
 
Home        Post        Edit        Post a Comment
 


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Sorry for the late post guys,Im a little on the pu...
 
  Well its been another busy weekend. We had a littl...
  Not much happening here. Brady just went to sleep,...
  HAPPY BIRTHDAY BRADY BOY!!!!!!!!!!!!!!!!!
  Check out our pictures in photobucket. Just click ...
  Well first off,Brady is standing here sniffing my ...
  Brady dancing at Angelman Walk
  Angelman Walk 2008
  Never Judge
 
Archives
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy