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Sunday, May 18, 2008 |
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Brady dancing at Angelman Walk
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posted by angelwings
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10:22 PM
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Hi! I just completed the AS Walk this weekend in Texas, in honor of my 1.5 year old nephew Alex. Alex was diagnosed with AS just a few months ago, although he has had a battery of tests ran on him since November. I had never heard of AS before this but I am coming to find out quite a bit. I am going to send your website to my sister, as she is looking for other parents out there who are going through the same things she is.
I have a blog and will post pictures this week from our walk.
God bless your sweet angel Brady and all the other Angels out there.
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Angelman Walk 2008
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Mom and Brady on the Ferris Wheel
Peytons big crab release :)
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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Hi! I just completed the AS Walk this weekend in Texas, in honor of my 1.5 year old nephew Alex. Alex was diagnosed with AS just a few months ago, although he has had a battery of tests ran on him since November. I had never heard of AS before this but I am coming to find out quite a bit. I am going to send your website to my sister, as she is looking for other parents out there who are going through the same things she is.
I have a blog and will post pictures this week from our walk.
God bless your sweet angel Brady and all the other Angels out there.