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Thursday, May 15, 2008 |
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| WOW!!! Do you guys see where were at on our fundraiser,were over 100%!!!!!!!!!!! I really didn't think we would do this well this year,but everyone has been so generous,thank you all so much!! Its such an important time for the ASF,with all the new advancements being made. It seems like just maybe,a treatment or even a cure,could be around the corner. Thank you all so very much for supporting this very important cause. Not only would treatment or a cure,benefit individuals with AS,but could be very beneficial to people with other neurological disorders or autism. So again,thank you all for the support,we made our goal. We are looking forward to the walk this weekend,its going to be like a big family reunion,its such an amazing experience. I will be sure and post lots of new pics,not only of Brady and Peyton,but of all the other Angels and their families as well. So keep checking back after Saturday and Sunday. I wont be posting anymore until after the walk,so wish us well. Hope you all have a good weekend. HUGSSSSSS |
posted by angelwings
@
10:28 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Just wanted to let everyone know that the weather ...
Say a prayer for us. The weather is terrible here,...
In honor of sweet Ashley,we love you.
Well I have good news and bad news. The bad news i...
Mom and Brady on the Ferris Wheel
Peytons big crab release :)
Well,were back from our mini vacation,and we had a...
Brady loves the pool!
Brady on the elevator.
Beach pictures.
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| Archives |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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| Angelman Links |
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