Click Here to Read Brady's Story
Tuesday, May 13, 2008
Well,were back from our mini vacation,and we had a blast! Brady loved the glass elevator,I think he would have rode it up and down over and over if we had let him. He giggled each time we rode it. He loved the pools,hot tubs and the beach. He played so hard this past weekend,but he was a trooper the entire time. We went to a shopping area where there are shops all along the side walks and a big Ferris wheel in between the shops. Brady got outside the eating places and was peeking in at the people eating,tapping the glass like he was starving,lol. He got so mad when we wouldn't take him in,he just lay down in the middle of the sidewalk and refused to get up. It wasn't so funny at the time,but now we can laugh about it,lol. We took him to Dip N Dots next,but he refused to even try the ice cream!!
Anyway we all rode the Ferris wheel,I must admit I was a little nervous about taking Brady up. He done really good though,he just laughed the entire time. He also loved looking off of our balcony,we were on the 9th floor. We didn't get in the beach water though,the jelly fish were awful this weekend. Brady made lots of new friends in the pools and when we went shopping,he just loves being around new people. All in all,we had a great time and hey,we made it through the entire weekend without breaking anything! Brady was so wore out today,he slept all night and until 2pm today. He got up on the couch tonight and went back to sleep,lol. At least now we know how to tire him out!
Now were getting ready for another big weekend,the Angelman Walk-A-Thon in Mobile! Were getting so excited,this week is gonna go by really slow I'm afraid. Once again,I want to invite all of you to come walk with us,the more the merrier!!!! Its going to be a special year for us,this will be Brady's first walk-a-thon,since he started walking!
Anyway, I will have lots of pictures to post here after Saturday,so be sure and check back.

posted by angelwings @ 12:48 AM
   0 comments
0 Comments:
 
Home        Post        Edit        Post a Comment
 


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Brady loves the pool!
  Brady on the elevator.
  Beach pictures.
  Beach pictures.
  Beach pictures.
  Brady at beach.
  Not much happening here,other than Brady being a l...
  Brady is doing well today,feeling lots better. We ...
  Would ya just let me eat!!!!!!!!!!!
  Well,just got up to check on my clothes in the was...
 
Archives
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy