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Tuesday, May 06, 2008 |
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Well,just got up to check on my clothes in the washer and of course its on the fritz yet again. So while I sit here and wait to see if my clothes are gonna ring out,thought I would post an update.
Things are good here,but thought I would loose my mind yesterday. Brady was so darn cranky. I think his Clorox must have had an ill pill in it. He was so ill all day long,he hit,pinched,pulled hair and snatched everyones glasses off. He fussed all day long,I don't know whats going on with him. His ear infection seems to be better and we aren't seeing any seizures,so hopefully he was just having a bad hair day. Hopefully he will wake up refreshed and in a good mood this morning,(fingers crossed)! I don't know how many more days I can take like yesterday,I think I need a vacation,lol. Were heading out to the beach in a few days,so hopefully that will energize all of us,we really do need a break. I just pray that Brady isn't getting sick!!!!
Anyway,as for our fundraiser,the cash donations and door prizes keep coming in :) I think we might actually reach our second goal,whooo hooo!! I'm getting really excited as the walk draws closer,were going to have such a good time. I want to invite all of you one more time,to come and walk with us,you would never forget it!! If you need more info,just contact me.
I'm heading to bed now,so I will post more later. I have more pictures to post too,as soon as I get up and charge my camera battery,lol. So stay tuned :) |
posted by angelwings
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2:41 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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