Click Here to Read Brady's Story
Sunday, May 04, 2008
Brady continues to do well,no ill effects from his earlier clorox adventure. He has been eating like a pig this afternoon,he just cant seem to get full. He has even eaten meat today,he had ham earlier and for supper he actually ate some hamburger steak,not sure what the change is,but were very excited.
Not much else happening here. Were heading to the beach this coming up weekend,so we should have some great pictures to post,so stay tuned.
As for our fundraiser,as you may have noticed,we are up to $1,135.00. I would have never dreamed that we would have done this well,with things like they are these days,so thank you all so much for contributing!!
Anyway I will post more later.

posted by angelwings @ 11:38 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

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  Peyton and Brady jumping on the tramoline.
 
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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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