|
 |
|
Thursday, June 12, 2008 |
|
Ok, this is the 4th time I have tried to update tonight,but it keeps getting erased. So I'm gonna make this short and sweet! Brady is doing well,chasing the dog, carrying the kitty around by his head,and even got tired of stuffing paper in a container this afternoon,so he decided it be even more fun to stuff the kitty in. The kitty wasn't to happy,but he let Brady do it,lol. Also Brady has discovered that its cool to smell of everything. He sniffs everything from dirty socks,to food,lol. I caught him sniffing my feet one night,and no they didn't stink, lol. It just cracks me up to see him smelling of everything,its like a whole new world has been opened up for him. Everything else is good,no seizures since the VNS. The incisions are looking a lot better and his foot isn't bothering him anymore.
Anyways many of you have had questions about Brady's VNS incisions,so I thought I would post some pictures. If you look closely you can see the outline of the round battery on his chest.
Gotta get going,Brady is having a wild night tonight,and a late one at that! |
posted by angelwings
@
2:14 AM
  |
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
Just wanted to let you guys know that we didn't go...
Things are good here. I took Brady to the Ped toda...
Well,Brady continues to have trouble with his foot...
Well,its been another busy night here at our house...
Brady is still doing well. His incision is looking...
Turned out to be a busy day here today. We had 3 g...
Not much to post here tonight. Brady is doing good...
Sorry for the late post guys,Im a little on the pu...
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
